Dearest Paisley

My sweet Paisley. Today we celebrate your life. One year ago, you surprised us all and came a little early! But that suited us all fine because we were so ready to meet you!

 

My baby girl, you will never fully comprehend the impact that you have had on my life. God placed you in your mommy's tummy at His perfect timing. The day you became a thought in our minds, was the same day that Aunt-T and Uncle Harry found out some scary news. For the next nine months, you and I took on a journey where God performed many miracles!

 

I think you were excited to meet all of us too! Your mommy was at the doctor's many times trying to slow you down! You needed to grow a little more in order to enter the world safely. In preparation for your too-soon arrival, the doctors put you on steroids to help your little lungs get strong enough so that you could take in this big world with your first breath. My doctors put me on steroids for my lungs too :) you and I were getting stronger and stronger at the same time so that we could survive. My lungs needed help for a different reason than yours though, my darling. For a reason you can't understand now, but just know that what God put me through made me strong enough to take in this big world too! Our medicine that made our lungs all better, also made me one of your favorite snuggle buddies ;) there was a whole lot more of Aunt-T one year ago!

 

The day you entered the world finally came and I could not wait to meet you! Na and Carson came to pick me up and the first thing your silly brother said to me was, "wow, you're getting chubby!" Little did he know that you too were going to be chubby! Which made for the best naps you and I had together.

 

Sweetheart, I tried to be there for your big debut but Na had to turn around and take me home. The medicines the doctors gave me just the day before, made me too sick for the hospital. But when I finally met you, you took a weight off of my emotions and sickness. Every time I got to hold your tiny fingers and tiny toes and watch you struggle to open up those big brown eyes, my heart would burst with all the love I had for you.

 

There was some more medicine that the doctors gave me that left me without any hair. I was very sad to look so different but soon enough it started to grow back very slowly. Your precious little head has been very slowly filling up with beautiful locks now too. I didn't like not having any hair, but thanks to you my precious angel, I haven't been alone ;)

 

My sweet girl, I had to say goodbye to my daddy a few days ago. My heart fell to pieces, but God had his timing right again. During the same time that we are grieving for one, we are celebrating for another! The day that he left this world, I got to come home and hold you. Once again you gave me so much peace and happiness during a difficult time.

 

Dearest Paisley, your life has been a blessing to so many that love you. I'm so happy that God chose me to be one who gets to look after you. And I thank Him for how He has blessed me with you.

 

I will continue to pray for your little life everyday. You have so much ahead of you, sweet girl. And your Aunt-T and Uncle Harry will be right there with you every step of the way. We will help you learn and grow and seek to follow Jesus. We will help you take on this big world with God's love and protection. We love you to pieces, Paisley. Happy first birthday!

 

The Full Dose

"I work all day, and then I have to come home and take care of a messy house." I could tell he was frustrated. The coffee pot was still in my hand and a towel in the other. I was trying my best to stay on my feet long enough to finish drying the dishes Harrison was washing by hand. My back couldn't take it any longer and neither could my patience. "What's wrong?" He asked. I shook my head as tears welted up in my eyes. I slammed the coffee pot in the coffee maker and walked back to the bedroom where I buried my head in the towel to catch my tears.

This was just a few weeks before my chest x-ray that would reveal the grapefruit sized tumor inside my chest. Not only was this thing literally sucking the life out of me, it was also in the perfect location to affect a number of my body systems. The ongoing symptoms were debilitating. Clearly my lack of energy and constant pain was beginning to take its toll on my two month old marriage. I was twenty-one for crying out loud! What twenty-one year old can't physically sweep the floors and wash dishes? There's a term for that: lazy. Which is exactly what I looked like to Harrison.

We watched a play in class this morning that stimulated numerous flashbacks. It's been interesting watching my emotions change towards different challenges during my time as a cancer patient. The first one was obviously total frustration stemming from, "what is wrong with me!?" 

It then turned to a short moment of fear when "cancer" was the word we knew about my two years of odd symptoms. Once we were well into fighting mode, my emotions turned to humiliation. My looks had changed drastically. People no longer recognized me. Yes, I cried over my looks a lot! Then just minutes after my last treatment, my guard came crashing down without warning. That part of the fight was over. I didn't have to play "tough guy" anymore. I was a wreck!

A lot hit me during those nine long months but never once did I think, "How awful. Oh my gosh! How scary!" No, I never thought those things. Not even with chemo, balding, bone marrow biopsy, bone biopsy, surgeries, etc. Those things never "shook me." Not until this morning.

This morning I thought all of those things as I watched the story of a women who was diagnosed, tested, and treated for cancer. I felt terrible for her! What a horrible thing to be faced with! But everything she went through, was everything I went through. The words from her doctors, were the same words that came from my doctors. I was feeling that way about myself. 

"If the nurse tells you your counts are too low for your treatment, you tell them to call me. You have to get the full dose every two weeks. We have to be very aggressive and totally consistent." My oncologist told me. And my response: "ok!" With determination written on my face and of course a smile. And no I wasn't trying to hide anything with my smile either. I was just ready to feel better and glorify God in the process.

I flashed back to that moment every time the main character's doctor said to her, "The full dose!" He continued to say this throughout the entire play. It reminded me of what put me on those steroids in the first place: chemo had to damage my lungs before they would lower my dose... The full dose. I was holding back tears, adjusting in my seat, and taking giant gulps of my coffee in an attempt to snap out of it. But they wouldn't stop. The flashbacks persisted.

The main character was dry heaving into a basin, and immediately I saw myself walking back to my chair, IV pole in hand, watching Harrison get up to plug my machine back in. "No stay there." I said to him. "Can I just sit in your lap?" With worried eyes, he sat back down and helped me into his lap. I buried my head in his chest and cried. "I don't feel good! I just want to throw up!" Then I saw my mom come in. I see now that couldn't have been a coincidence. I wonder what God was doing right there...

What I went through was huge. It took having to watch my experience being played out on a tv screen to realize that. I don't know if my emotions will transition into anything else pertaining to my situation. I certainly hope not! But that's up to God. And don't get me wrong, there was nothing bad about what I experienced today. I think this moment came a little late actually. Being aware of the extent of my situation will better help me to empathize with others and sympathize with friends and family. It gives me a heart rather than a stone cold demeanor towards real life situations.

Needless to say, I emailed my professor letting him know I won't be returning to class on Thursday to finish watching the play. I'd like to work out this reality without a room full of people ;)